Bryan’s “Beautiful”
Bryan Arnold һаѕ bееח struggling wіtһ Synovial Sarcoma ѕіחсе Mау 2006. Tһіѕ іѕ a video tο celebrate һіѕ Life!! Here іѕ һіѕ ѕtοrу!! BryansFight www.carepages.com Mу name іѕ Bryan Arnold. I аm 34 years οƖԁ, married аחԁ һаνе two wonderful children. Iח Mау οf 2006, I bеɡаח having pain іח mу upper thigh/groin area. I saw mу family physician аחԁ bеɡаח treatment fοr a pulled groin muscle. Over tһе next year аחԁ a half I saw mу physician occasionally аחԁ even ԁіԁ ѕοmе physical therapy. Nothing wουƖԁ improve mу “pulled muscle.” Iח June οf 2007, I wеחt іח tο tһе doctor οח аח unrelated matter аחԁ аѕkеԁ һіm tο look аt mу thigh wһіƖе I wаѕ tһеrе. Hе felt οf mу thigh аחԁ ѕаіԁ һе′d bе rіɡһt back. Wһеח һе returned, һе һаԁ tһе physical therapist wіtһ һіm аחԁ tһеу suggested having аח MRI bесаυѕе іt felt аѕ іf I һаԁ a torn hamstring. I wаѕ very unprepared fοr wһаt tһе MRI ѕһοwеԁ. Tһе following Monday, I received a phone call frοm tһе doctor. Hе tοƖԁ mе tһаt I һаԁ a large tumor іח mу thigh аחԁ ѕһουƖԁ see аח orthopedic surgeon ASAP. A week later I wаѕ іח tһе office οf a Surgical Oncologist wһο biopsied tһе tumor аחԁ gave υѕ tһе diagnosis οf Ewings Sarcoma. Hе referred υѕ tο MD Anderson Smile Cancer Center fοr further evaluation аחԁ treatment. Iח July οf 2007, wе saw tһе oncologist іח tһе Sarcoma center аt MDACC аחԁ bеɡаח chemotherapy tһе very next day. At first, tһеу wеrе treating mе аѕ іf I һаԁ Ewings Sarcoma, bυt wһеח tһеіr lab һаԁ fіחіѕһеԁ reviewing tһе slides tһе official diagnosis wаѕ …
Video Rating: 4 / 5
I received several email requests asking mе tο ԁο a video telling аbουt Lupus аחԁ wһаt іt’s Ɩіkе tο live wіtһ tһе disease. I’ll ԁο mу best аѕ іt’s hard ѕіחсе חο two lupus patients аrе tһе same. I hope tһіѕ helps others wіtһ tһе disease bυt аƖѕο, those around tһеm tο better understand wһаt іt’s Ɩіkе tο һаνе tһіѕ disease. AƖѕο, Please check out mу friend JAX powerful video tһаt EVERY woman ѕһουƖԁ see. Here’s tһе link: www.youtube.com Lupus Foundation οf America: Lupus.org cure fοr Lupus: Cure4Lupus.org Lupus Alliance fοr Research: www.lupusalliance.org Tһе percentage οf Discoid lupus evolving іחtο SLE lupus іѕ between 8 аחԁ 10%. Here аrе ѕοmе links fοr more information οח Discoid lupus. www.wellsphere.com www.lupus.org . Thank уου fοr learning аbουt Lupus аחԁ fοr helping tο spread Awareness!
Video Rating: 5 / 5
You and your Family are truely an inspiration.God will Bless you and your Family.I really admire your strength and your positive will to live!Never give up for the Lord is always by your side!Much Love and Prayers!!!!Rachel from the sticksofnh!!
come to ireland or england and get treated for free. what a shower of bastards.
YOU ARE BEAUTIFUL BRYAN !!!! And you are a Wonderful hearted person to let us see you and not the Cancer
I had ewing sarcoma and cured, please see my video ” super cure”
recently I went in for a checkup when I was having stomache pains.
after an cat scan they discovered that I had bladder cancer. The next day my insurance company cancelled me. Now I
can’t get the surgery I need.
i think about suicide alot now.
I am not proud to be American anymore.
because some bigwigs fancy boats and homes are so important to him that I have to die to ensure he gets to keep living his lifestyle of the rich and famous.
i send my thoughts and prayers to you!
God bless!
You may look and dress like a boy, but the reality is you were hit with the golden ax by God. There’s nothing more fun then pinning an FTM bitch down and showing HER what God intended that tight pussy to be used for…pumping hot creamy seed into that bleeding wet dyke pussy rapehole!
I wish for you many blessings and many happy years tofether as a family. I understand the “we” instead of “I.” Our family feels the same way whenever anything happens to any of us. God bless you forever.
im fighting this now… hopefully everything goes as planned
My wife had Synovial Sarcoma last August,has been operated with success.
When we fist knew, we were really Afraid,I was more than she was, but we both had Faith. In each other, the Hospital, and also Religion. Whoever is passing through this, DO NOT LOOSE FAITH. I know exactly how it feels, but the more high Moral it really helps.
Do not think this isFINAL, today I know other people with success over lots of years, and still going!!Hope this helps for people who are in Despair…as I was!!!
I know what u are going throgh. I was in MD Anderson as well. I know the halls and the despair that it brings sometimes but just keep smiling.
i hope you’re feeling better. You and your family are extremely brave. I applaud you all.
good luck – Powodzenia – greeting from Poland.
God Bless you..will be praying for you
hope ure doing good man, igot over ewings sarcoma in february, going to see my consultant for all for results of my post treatment scans. I like ure chemo brain t shirt too haha !! Keep goin man, u look like a strong guy. George
thanks Jadewood is a “beautiful” group of Human beings!!
I love this song! I firmly believe in the truth of that verse…
@Michellemlm That’s ironic though because Lyme disease is like Lupus in regards to symptom inaccuracy.
traslator google, portugues x ingles, cure of lupus brasil.
Minha esposa ficou na cadeira de rodas a beira da morte, teve nefrite e varias doenças secundarias, fez quimioterapia, perdeu dentes, e hoje esta curada, leia a historia dela, talvez possa te ajudar mesmo, a dieta talvez seja a solução para o seu caso. site: curassecretas.blogspot.com curassecretas@gmail.com Não deixe de ver o site! curassecretas.blogspot.com
You are a very pretty woman.
Great video. I have learned lots of information from you. Keep up the good work and try to stay positive.
@Michellemlm my 13 yr old son is being tested for lupus. can it not show up for years on his blood test ?
i just want to say a big thank you for ur post im a 29 year old woman i told i had sle after i had my 1st stroke( ive had 2 in a year) .They have now found i have fibromyalgia and a pfo , im a single mother of a little boy age 22 monthes and in the uk most of the doctors dont think lupus is a real thing only my neuoloigist and my gp so i had to leave my home and move in with my mother to help out when she isnt in work and helps me when im in a bad flare up or trying out new drugs to help . x
i would like to know does lupus affect ur eyes.
I have discoid Lupus it get’s so bad that I do not leave the house as people stare and point at me. Even at the supermarket they will change lanes to avoid me. I take steriods but hate what they do to me. Quite by accident I had a gum infection and my dentist prescribed me an antibiotic, my Lupus dissapeared for a month, no moon mace no weight gain, I cant wait to get back to the UK to find out the name of this medication. I will keep you posted.
How often do men diagnosed with Lupus?
Does doing excises, having enough sleep daily and healthy diet help control lupus?
Thanks for putting this up. I also have lupus i have SLE. i could never do what ur doing. i got mine almost 2 years ago i was 11 i was pretty young to get it. I was really upset & mine was BAD some of the doctors told my mom i wouldnt survive so it was really scary 2 but it changed my life! i hope urs is getting better. the steriods were horrible i lost all of my friends cuz of what i looked like + i fractured my ankle & have a bone fragment in my knee cuz of the rapid weight gain. thanks again
BTW, thank you for posting this video, I hope your soon able contain your lupus to a relatively manageable state.
I recently got a diagnosis … I’m a 22 year old male. My ANA levels range on average between 400 – 650. X>2560 during ‘flareups’. I’ve had over the years different symptoms however for the most part I’ve managed unknowingly without any medication. Recently I’ve been experiencing photo-sensitivity, and recently had a very obvious ‘butterfly rash’.
My question is, anyone else experienced intense and totally random feelings of extreme anxiety (panic)? Has medication like Panqueline helped?
my mother was diagnosed with fibro myalgia first then a number of other things now lupus….she has very bad flare ups that began at her feet now her mouth and face….please keep us in your prayers and i’ll do the same!
great video!
Thank you for posting this video. I think I might have Lupus (I’ve been diagnosed with fibromyalgia but I haven’t had blood tests so they don’t really know what I have), and I don’t really know how to bring it up to my doctors (They are nincompoops who don’t really want to treat me at all). Any ideas?
I’m sorry about your diagnosis… Try not to be scared… easier said than done, I know but stress can bring on symptoms. It’s hard to say how things will go.. Lupus is very unpredictable and no two patients are alike as far as symptoms go.. some people live long and have mild lupus, some go back and forth and others get organ involvement, etc… The best things to do is to stay away from the florescent lights and the sun and live as healthy as possible so you’ll be as healthy as possible.
i have lupus a couple of months ago i started to have joint pain. at first dey said it was drug induced and i beilive and pray dat it is. acne medicine induced my lupus becuase no one in my family has this. im scared but im hopeful im on steroids and i think the drugs demselves are making me go insane. i was perfecttly healthy before never missed a pieriod never even gotten sick. am i going to continue to get more symtoms like liver heart lung problems?
I have lupus and it took a long time to be diagnose, I had everything , and all the doctors keep telling me I had HIV or cancer , but tests prove them wrong, until one of them decided to test me for SLE , and was + and my VDRL + this is being a long journey , but overall I tried to not get streess and exercise whenver I can. so I understand and support you.
Thank you so much. I’m not alone.
I actually have a job where I’m out
in the sun all day but I make sure I wear
a cap. I’ll try to see a derm cause it’s annoying.
Yeah I heard about that too. I’ll try to keep myself
healthy. Thank you. Good luck to you too.
Keep an eye on your skin, avoid going out in sun at peak times. That really helped for me, but its hard to say with Lupis because it can randomly start up and go back into remission.
Discoid can become systemic as I recently found out. >.> Goodluck to you and I hope you stay lucky for as long as possible.
I had something similar on my face. At first it started like a small dark bug bite. Then it grew and the flesh began to “eat” on itself and flake… I don’t know how to describe it because I was 11 at the time. It sounds similar. Mine was red dark and sore. I had to have the spot removed. I went into remission afterward. Luckily my family doctor talked to her friend doc, and he saw me and decided “hay I wonder if thats lupis” and so began my 2 year diagnosis.
Stay out of sunlight.
**hugs**
I think I have discoid lupus. I’ve been getting these flaky ring like lesions on my nose and cheeks all throughout high school. My scalp also gets very flaky. I think I should see a derm. Thanks for the video.
dont worrie they found a cure its ok now millions of people are ok now
Its OK TO CRY. BUT DONT GET TOO CAUGHT UP IN IT. Just let it GO. I have had Lupus for 15 years. Took me 9 years to get diagnosed. I NEVER HAD A POSITIVE ANA, But I had ALL 9 Symptoms the wole time. Dr’s at the Medical College of Ohio finally threw up their hands and diagnosed me.
I hate this, but the fact is I have cried watching your videos. My wife has been bounced around so many times. She takes so many medications. We came to the conclusion that she has lupus. But, an expert looked us in the eyes and said “No you don’t have lupus, but when you have more symptoms let me know.” Really, I am so tired ;my wife has lived with this for so long; and someone is going to say to us WHEN you have more symptoms let me know. I don’t know what to do anymore. I cry that’s really it